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Short of Breath, Full of Life: Stronger Than Cystic Fibrosis (in English)
Jessica Maetz
(Author)
·
Philippe Desjardins
(Translated by)
·
Independently Published
· Paperback
Short of Breath, Full of Life: Stronger Than Cystic Fibrosis (in English) - Desjardins, Philippe ; Maetz, Jessica
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Synopsis "Short of Breath, Full of Life: Stronger Than Cystic Fibrosis (in English)"
Suffering from cystic fibrosis, an incurable genetic disease, Jeanne has been fighting to breathe since birth. Despite a shorter life expectancy, she is resolved to fully appreciating every instant of life that she is given.In this autobiography, from multiple perspectives, we share Jessica Maetz's joys and pains, and her hopes and doubts. She passionately shows us how to live fully, despite having a unlucky set of genes. The author is involved in the Win Against Cystic Fibrosis Association, to which half of the royalties from this book are dedicated. As sponsors of this association, Yves Duteuil and Laurence Ferrari were touched by this testimony.The original version (in French) is available under the title "Moins de souffle, Plus de vie."